Life Story Work with People with Dementia: Ordinary Lives, Extraordinary People

Life Story Work with People with Dementia: Ordinary Lives, Extraordinary People

By: Ruth Eley (editor), Polly Kaiser (editor), Bob Woods (contributor), Ponnusamy Subramaniam (contributor), Anna Gaughan (contributor), Broster Broster (contributor), Jean Tottie (contributor), Gillian Drummond (contributor), Shaw Shaw (contributor), Steve Milton (contributor)Paperback

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Introducing life story work, a way for people with dementia to connect with their relatives, carers and the professionals working with them. This evidence-based book explains the many benefits of life story work, with practical guidance for introducing it in a variety of settings. The authors show how life story work can empower people with dementia to inform care practitioners and family members what care and support they may need now and in the future, by taking into account their past and their future wishes and aspirations. The book includes practical information on how to get started, ethical considerations such as consent and confidentiality, and considers issues of diversity and how to address them. The voices of practitioners, researchers and family carers sit alongside those of people living with dementia to present a wide-range of perspectives on life story work.

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About Author

Polly Kaiser has worked with people with dementia since 1984, first as a researcher in England and France and subsequently as a clinical psychologist. She was the National Lead for Mental Health in Later Life for the National Mental Health Development Unit (NMHDU - 2009-2011). She was a founding director of the National Life Story Network. She is a consultant clinical psychologist in Pennine Care NHS Foundation Trust and is an honorary lecturer at the University of Manchester doctoral training program for clinical psychologists. Ruth Eley is a qualified social worker and former deputy Director of Social Services. As the former National Programme Lead for Older People and Dementia in the Department of Health she contributed to the development of the English National Dementia Strategy and led its implementation support. She is a trustee of a Housing Association in Wales.


Acknowledgements. Foreword. Dawn Brooker. Introduction. Ruth Eley and Polly Kaiser. Section 1: Where has Life Story Work Come From? The Context of Life Story Work. 1. Narrative Approaches to Life Story Work. Polly Kaiser. 2. The Policy Context for Life Story Work. Ruth Eley. 3. Values, Rights and a Compassionate Culture - The Bedrock of High Quality Care and Support. Anna Gaughan. 4. Equality and Diversity in Life Story Work. Polly Kaiser. Section 2: Does it Work? The Evidence Base for Life Story Work. 5. Understanding the Outcomes of Life Story Work. Kate Gridley, Social Policy Research Unit, University of York, UK. 6. The Evidence Base for Life Story Work So Far. Professor Bob Woods, DSDC Wales, Bangor University, UK and Ponnusamy Subramaniam, Health Psychology Programme, Universiti Kebangsaan, Malaysia. Section 3. Why is it Important? The Benefits of Life Story Work. 7. The Benefits of Life Story Work for People with Dementia. Steve Milton. 8. The Benefits of Life Story Work for Family Carers - A Personal Perspective. Jean Tottie, Former Carer and Chair, Life Story Network CIC. 9. The Benefits of Life Story Work for Paid Staff. Lesley Jones and Gillian Drummond. Section 4: How Can We Use It? The Practicalities of Life Story Work in Various Settings. 10. Community Based Approaches to Life Story Work - Keeping People Connected. Ruth Eley, Polly Kaiser, John Shaw and Pat Broster. 11. How Does the Introduction of Life Story Work into a Memory Service Benefit Individuals with Dementia and their Family Carers. Joanne Sutton, Merseycare NHS Trust, UK. 12. Life Story Work for People with Dementia in Acute General Hospitals - An Alternative Model of Care? Rachel Thompson. 13. Life Story Work in Care Homes. Victoria Metcalfe, Dementia Guiding Light - Evermore, UK. 14. Spirituality and Life Story Work. Polly Kaiser. 15. Using Life Story Work in End of Life Care. Polly Kaiser. 16. Identifying and Overcoming Challenges in Life Story Work. Jane McKeown, Sheffield Health and Social Care NHS FT, Kate Gridley and Nada Savitch. 17. Arts, Dementia and Life Story Work - Every Picture Tells a Story. Maria Pasiecznik Parsons. Section 5: What Next? 18. A European Perspective: New Opportunities. Marie-Jo Guisset Martinez, Associated Member, ICE Innovation in Care for the Elderly, France. 19. Conclusions and Looking Ahead. Polly Kaiser and Ruth Eley. Useful Resources. References. Index.

Product Details

  • publication date: 21/09/2016
  • ISBN13: 9781849055055
  • Format: Paperback
  • Number Of Pages: 280
  • ID: 9781849055055
  • ISBN10: 184905505X

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