What do national dementia strategies, constantly evolving policy and ongoing funding difficulties mean for people living well with dementia? Adopting a broad and inclusive approach, Shibley Rahman presents a thorough critical analysis of existing dementia policy, and tackles head-on current and controversial topics at the forefront of public and political debate, such as diagnosis in primary care, access to services for marginalised groups, stigma and discrimination, integrated care, personal health budgets, personalised medicine and the use of GPS tracking. Drawing on a wealth of diverse research, and including voices from all reaches of the globe, he identifies current policy challenges for living well with dementia, and highlights pockets of innovation and good practice to inform practical solutions for living better with dementia in the future. A unique and cohesive account of where dementia care practice and policy needs to head, and why, and how this can be achieved, this is crucial reading for dementia care professionals, service commissioners, public health officials and policy makers, as well as academics and students in these fields.
Shibley Rahman graduated in neuroscience and medicine from Cambridge University. There he also completed his PhD in frontotemporal dementia, commencing a lifelong interest in the timely diagnosis of dementia. He also trained to postgraduate level in medicine, law and business. Shibley speaks regularly about dementia diagnosis and post-diagnostic care, researches wellbeing and advocates rights-based approaches.
Forewords by Kate Swaffer, Chris Roberts and Beth Britton. Acknowledgements. Preface. Introduction. 1. Stigma, Citizenship and Living Better with Dementia. 2. Culture and Diversity in Living Well with Dementia. 3. Global Strategies for Living Well with Dementia. 4. What Might Living Better with Young-Onset Dementia Mean? 5. Delirium and Living Well with Dementia. 6. Care and Support Networks for Living Well with Dementia. 7. Eating and Living Well with Dementia. 8. Incontinence and Living Well with Dementia. 9. How is 'Whole Person Care' Relevant to a Person Living Well with Dementia. 10. Inequalities and Living Better with Dementia: A Focus on Housing. 11. Does GPS Tracking Have a Role to Play in Living Well with Dementia? 12. Rights-Based Approaches, Personal Budgets and Living Well with Dementia. 13. Art, Music and Creativity for Living Well with Dementia. 14. Explaining the Triggering of Memories in People Living Well with Dementia. 15. Innovation, Antipsychotics and Living Well with Dementia. 16. Promoting Leadership for Living Well with Dementia. 17. Conclusion. References. Index.
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