Some people have always had to find ways of living with long term conditions such as diabetes or coeliac disease, but as people live longer, increasing numbers of us now experience long-term poor health. While some conditions that previously limited the length of life are manageable a growing number of people live with long-term conditions. Against this backdrop, Long Term Conditions explores the complex issues surrounding the experience of long-term illness and the enormous pressure this puts on individuals, their families and carers and on health and social care services. The perspectives of each of these groups are voiced within this book, with chapters written by people who use health and social care services, carers, policy-makers and practitioners.
Using a variety of research methods to get to the heart of the matter, the book probes assumptions about the experience of long-term poor health and what constitutes good care. Its aim is to challenge readers to think critically about existing policy and provision and to inspire change based on sound evidence and a drive towards greater multi-professional working.
Long Term Conditions provides academics, practitioners and students with a thorough grounding in the complex issues surrounding the experience and management of long-term illness. It is an ideal text for courses on policy, management and practice in health and social care.
Introduction - Cathy E. Lloyd and Tom Heller PART ONE: RECEIVING CARE Introduction - Cathy Lloyd Living with Early Dementia - Sir Terry Pratchett Disability and Illness: The Perspective of People Living with a Long-Term Condition - Margo Milne with Mary Larkin and Cathy E. Lloyd Experiencing Depression and Diabetes - Katharine Barnard and Cathy E. Lloyd Experiencing and Managing Medically Unexplained Conditions: The Case of Chronic Pelvic Pain in Women - Elaine Denny Me and ME: Therapeutic Landscapes in an Unfamiliar World - Sara MacKian PART TWO: WORKING WITH PEOPLE WITH LONG-TERM CONDITIONS Introduction - Tom Heller How to Make Health and Social Care Research Radical and Really, Really Useful - Rachel Purtell and Andrew Gibson Naught for Your Comfort: Quality of Primary Care for People with Long-Term Conditions - Tom Heller Diabetes and Pregnancy: Service-Users' Perspectives on Services and on Research - Cathy E. Lloyd and Sarah Earle Coeliac Disease: Psychosocial Factors in Adults and Children - Ruth A. Howard, G. Urquhart Law and Jane L. Petty Working with Vulnerable People: Experiences of Disability - Mary Larkin PART THREE: DELIVERING HEALTH AND SOCIAL CARE FOR PEOPLE WITH LONG-TERM CONDITIONS Introduction - Alistair Hewison Delivering Health and Social Care for People with Long-Term Conditions: The Policy Context - Alistair Hewison International Experiences of Integrating Health and Social Care for People Living with HIV - Erica Richardson Worth a Risk? Risk Taking and People with Long-Term Conditions - Tom Heller What About the Carers? - Mary Larkin Ethics and Long-Term Conditions: A Reflective Approach - Stephen Pattison