In times of global economic and political crises, the notion of solidarity is gaining new currency. This book argues that a solidarity-based perspective can help us to find new ways to address pressing problems. Exemplified by three case studies from the field of biomedicine: databases for health and disease research, personalised healthcare, and organ donation, it explores how solidarity can make a difference in how we frame problems, and in the policy solutions that we can offer.
Barbara Prainsack is a Professor at the Department of Global Health and Social Medicine at King's College London. Her work looks at social, ethical and regulatory aspects of bioscience and biomedicine, often giving a voice to alternative or marginalised perspectives. She is a member of the National Bioethics Council in Austria, and the Ethics Group at the UK National DNA Database. Alena Buyx is Professor of Biomedical Ethics and Co-Director of the Institute of Experimental Medicine, Christian-Albrechts-Universit t zu Kiel, Germany. She works in biomedical, research and public health ethics, directing several bioethics research projects, and providing local, national and international research and clinical ethics advice. Dr Buyx is a member of the German Ethics Council.
1. Solidarity. A brief history of a concept, and a project; Part I. Theorising Solidarity: 2. Solidarity - intellectual background and important themes; 3. What is solidarity?; 4. Solidarity - normative approaches; Part II. Solidarity in Practice: 5. Solidarity in practice I: governing health databases; 6. Solidarity in practice II: personalised medicine and health care; 7. Solidarity and organ donation; Part III. Conclusions: 8. Solidarity with whom? Conclusions and ways forward.