For sixty years genetic counselors have served as the messengers of important information about the risks, realities, and perceptions of genetic conditions. More than 2,500 certified genetic counselors in the United States work in clinics, community and teaching hospitals, public health departments, private biotech companies, and universities. Telling Genes considers the purpose of genetic counseling for twenty-first century families and society and places the field into its historical context.
Genetic counselors educate physicians, scientific researchers, and prospective parents about the role of genetics in inherited disease. They are responsible for reliably translating test results and technical data for a diverse clientele, using scientific acumen and human empathy to help people make informed decisions about genomic medicine.
Alexandra Minna Stern traces the development of genetic counseling from the eugenics movement of the early twentieth century to the current era of human genomics. Drawing from archival records, patient files, and oral histories, Stern presents the fascinating story of the growth of genetic counseling practices, principles, and professionals.
Alexandra Minna Stern is Professor of Obstetrics and Gynecology, American Culture, History, and Women's Studies, and a core faculty member in the Science, Technology, and Society Program at the University of Michigan.
AcknowledgmentsIntroduction1. History: Genetic Counseling Develops2. Genetic Risk: An Evolving Calculus3. Race: Tense and Troubled Relations4. Disability: The Dynamics of Difference5. Women: Transforming Genetic Counseling6. Ethics: Shades of Gray in Genetic Counseling7. Prenatal Diagnosis: The Handmaiden of Contemporary Genetic CounselingConclusionAppendixesA. Archival Materials ConsultedB. IntervieweesC. Master's Degree Genetic Counseling Programs in North AmericaNotesIndex